Thanks for the response. You might want to look at the extended bolus feature on the pod. I have found it works great for pizza, spaggetti, etc. I just give her a bolus something like 40% now and 60% over the next few hours. This has worked well for us.
We haven't had any real problems with the Cannula popping out. We did have a problem at first installing the pod. We had failed to properly "pinch" the skin and the thing fires so hard that it caused the cannula to bend durinig insertion (she's small and doesn't have a lot of fat). Ever since we pinch the skin better, we haven't had any problems.
My 7 year old son has been using the Omni Pod for 3 months. He's played basketball, football and gone swimming. We've never had any problem with the pod staying attached. So far, there has been no skin irritation at all.
He loves his Pod. It has definitely made diabetes a much smaller part of his life and has greatly increased our control over his bg levels.
Nice to hear from another parent. I thought I wrote your email when I first read it due to our similarities. We have been using the pod since March of last year. Dont know what # we were, but at the time we were clearly dealing with a "startup" company going through its early growing pains.
The cannula popping out is an issue. We've had it happen a handful of times in about nine months. Our son is extremely sensitive to every time he bangs the darn thing that he wants us to inspect it immediately to make sure it stayed in. However we have noticed that while it stays in sometimes it can get kinked and does not result in a pod error unfortunately, he doesnt get the insulin and result is he goes pretty high.
Not a pod issue, but we still have problems figuring out boluses for pizza, pasta, chinese food and ice cream. All send him sky high over a super long period (usually all night and overnight). A1C's have been bouncing around in the 6's, mainly due to my wife putting a ton of effort into figuring out all his factors on a daily basis.
Good luck with the stock and with your daughter.
I have a mixed answer for you (I am dad of 4YO TI using Omnipod).
We usually just apply the pod to the site after wiping down with alcohol. On occasion we will prep a site with mastisol first. He has worn it swimming, in the bath, etc. A prolonged exposure to water over a couple of days (say an hour or two per day in the water might cause it to start peeling off his body.) We would counteract that with a piece of medical tape or a band aid to hold in place. The patch adhesive has not been a problem for us/him. He has a slight rash after a couple of days, sometimes complains of itching. We put some lotion / triple antibiotic on the area after removing and doesnt seem to be a problem.
The plastic part of the pod is attached to the adhesive in really only two areas. The pods that come off our son tend to rip at those two areas. If we notice it starting to rip, we secure them with a band aid and it seems to work fine. I recommend they find a way to attach the adhesive patch more soundly to the plastic housing. That way there is less opportunity to rip in just one or two spots.
Another problem we have had is that if he bumps the pod vigorously (as only 4 year olds can), the cannula can get bent at the area its going into his skin. He can then run seriously high because he is not getting the insulin into him. For some reason the pod does not recognize an occlusion. Also, the cannula has become dislodged from his skin on occasion as well, usually a case of rough housing induced it.
Again, we are very satisfied customers so far despite many early stage issues.
Perhaps we should be on the product design team up at Insulet. We would be very willing participants to help improve the device.
Ok, back to the podd.... No tubes - no wires for kids to pull out - stays on fine. It has simply changed all of our lives and not to sound like an omnipodd commercial - it has made diabetes a smaller part of our lives. I can't wait to see what they come out with in the next 5 years.
Now for my discloser, as soon as we found out she was going on the podd, I bought some stock in my ira. Bought a little more along the way - not too crazy. I felt like I had a bit of an advantage in seeing and using the product. I got to deal with omnipod, see their sales rep and grill her on investment questions and use the product on my child. I have no intention of selling this stock below 100 a share. I figured out that each patient is about 5,000-6,000 a year in revenue for omnipodd and I could easily see a market for 100,000 paitents in the next five years. That would be 100,000 x 5K = $500,000,000 in revenue easily... hmm that would equate to 200,000,000 in earnings and a PE of 3 at the current market cap.... $100 a share would be a 2 billion market cap - not out of line. It is also a nice recession stock as I still have to change that podd every three days...
My daughter started on the podd in early Novemeber. We are in Alabama and at the time she was one of the 3800 in the country on the podd. She is also probably one of the younger. She just turned 4 in August and was orginally diagnosed type 1 when whe was 15 months old. Her A1C was running 8.50-9.00 until the podd where her latest reading was 7.1 - A very nice improvement. I can answer a few questions on the adhesive.
We have not lost a podd due to the adhesive falling off. She takes her bath, runs around crazy like a four year old does, and we have only lost one podd due to the canulous (sic) falling out. This was when she had the podd on her belly and scraped a table while sitting up in her chair. This was during the first week of having the podd, so I think they figure out how to protect it a bit asa time goes on (again - she's only four).
We change the podd every three days and they have a clever system so that you reall have to change the podd every three days. After 60 hours it will alarm and then after 72 hours it will alarm every few minutes until you change it. It will turn off after 80 hours. These are hardwired into each podd so you will buy a specific number of podds per month. Of course the best part is that it is 100% covered by our insurance and they auto ship us the podds every month. We have only had one problem early on during the installation of the podd on the skin - but this was our fault. You really have to "pinch" the skin as the podd fires in so that you get a good hunk of fat. If you don't do this on a small child, the canulous will bend during the insertion and might not work right. After getting this cleared up we have not had any problems.
The adhesive is so good that the most painful part of the whole process is actually taking the podd off. They make some solvent disolver so that helps.
The hand held unit is easy to understand and you can really do some fine control with it. She really can eat anything she wants. Pop tart that is 37 grams of carbs - no problem. She eats it - we put in the carbs for a "bolus" and is gives her a short dose to compensate, just as your pancreas would. Orea cookies, ice cream, pizza, no problem... She can eat anything any other kid eats and it really has made a big difference in her quality of life. Before we would have to give her a shot and then she really couldn't eat anything else until "snack time" unless you gave her another shot. With this you can give her a bolous and then if she eats a little more - fine - give a little more bolus - your always hooked up.
The only danger that you have to be careful of is if it falls out and you didn't notice it would still think it's pumping away. This means within a few hours she could have some decay issues if you don't check her. With the lantus shot, she always had some acting insulin on board, but with just novalog (the fast acting) she could spike high fairly quickly if you didn't know she was disconnected. Hasn't been a problem yet and we check her frequently of course. She's also getting to the age where she can cmmunicate her highs and lows better so this is improving.