I'm new to BCRX as of last Friday. My main reason for my investment is BCRX is their development of an Oral Medication to prevent HAE attacks. I myself have HAE (Hereditary Angioedema). Been in my family for 5 generations. Currently during attacks, I treat myself at home with a self infused IV. I look forward to the day when I and other HAE patients can take something orally long term to prevent attacks from even beginning. HAE attacks of the stomach/abdomen are extremely painful. Other areas of the body are also effected by HAE attacks, the worst being the airway. Swelling in the airway can cause death. I lost my father when I was 10 when his airway swelled shut. So, you can see my interest in BCRX and their development of a new oral drug. Please let me know if you have any questions concerning my disease, I'd be happy to answer them. Bad day today after earnings, but I'll be long for quite sometime. Good luck to everyone in their investments.
I think you'll find this a good MB. Many good posters here. They way you were responded to should tell you something. Reminds me of a bunch of dogs smelling each others behind...a way of saying hello.
Each person is effected differently with HAE. One member of a family may have weekly attacks, While others may only have 1 every month or so. My daughter also has HAE... There is a 50/50 chance you will pass the bad gene onto your child. My other daughter does not have HAE, so I did the 50/50 thing. What HAE patients want is an easy to use treatment, and swallowing a pill can't be much easier. And the nice thing is that you could go on something long term and would not have any attacks, and that's the idea here that BCRX has in mind. There are people with severe cases who do self infuse themselves twice a week with Cinryze. VPHM(Recently acquired by Shire) to prevent attacks from even occuring. There are other choices also but I won't get into those unless others on the board want to hear about them. I myself self infuse only when an attack starts, my daughter does the twice a week thing so she doesn't even have attacks... I hope I've answered your question ??? If not let me know and I can expand on things.
Nothing like putting your money where your moth is. This is a good company in a crooked marketplace. They try to help people and make money in the process. I invested in Peramivir watching the ravages of the flu on healthy people. We all have our reasons. I have faith in their ability to apply science for the good of mankind and their business. I hope their product is a success for you and others in your situation. Good luck to you and be aware this a heavily manipulated stock.
Welcome aboard Mookie, so sorry to hear of your condition and the effect it has had on your family. It's a small community with few companies working on treatment,; surprised you are the first to come forward on this board.
I'll give you a pass on being a Met's fan!
It's good to have you here. I have done a bit of research myself on the disease and all I have to say is I'm sorry that you have it and I really hope you're able to get the treatment that you need and want to be able to manage it and even prevent it.
What product are you currently taking? Do other HAE patients that you know desire an oral treatment, or are they content with the in the house intravenous treatment?
I take a C1-Inhibitor product(The stuff we have low levels in our blood stream manufactured by CSL Behring. The products are crazy expensive at this time. To answer your other question, HAE folks would love an oral treatment, no doubt about that !!! Keep in mind this is a Rare disease, so I'd put us at around 6,500-10,000 people in the entire U.S that have my condition.