I am at the conference in the Apex Room at Lois Pope Life Center at UM. About 50 people / mix of doctors and patients. Physicians asking good questions - patients not so much. Dr. Barbui talking about PV. Dr. Tefferi facilitating Q&A after Barbui presentation.
Irish, are there any updates on CRs or PRs since ASH, Dec. 9, 2013? Are there any updates on liver function tests or hints that the 30 follow-up data are coming soon, which should verify that the LFTs are reversible?
Is there a way to verify who you are for some of us who are skeptical of the agendas of the various #$%$ who post here?
I arrived late to Dr. Vannucci - New Science of Myeleoproliferative Neoplasms. Q&A:
1. Importance of molecular signature in prognosis and treatment strategy.
2. JAK2 positive with high allele burden poor prognosis with more thrombosis and greater transformation to blast disease.
3. Jak2 inhibitors affect cytokines. Dr. Tefferi - "Punch the disease so doesn't hit as hard." (My Interpretation: Reduces symptoms).
Most patient attendees have PV not MF - MF too sick...
1. Told one 30-something PV patient not to worry about MF transformation: "Tempted to give you a cure before you are 40."
2. Currently available drugs generally more harmful than helpful. Some are poison.
3. Likes Bulsulfran for PV. "But not very expensive" so few mention it.