A view of the infusion which I found enlightening:
"I had my first fusion. Here's the story:
Entered fusion center at doctor's office. I was given no premedication or prescription for afterwards.
I got comfortable in a lounging chair, given a soda, and a video to watch. My blood pressure was taken. It was 140/86. The Iv was inserted with no problems, which I worried about because it once took a lab person 9 sticks to get a vein! I've got itty bitty ones.
The Tysabri solution was in a small IV bag, and the machine counted down from 100 to 0 (I assume ccs) as the clear liquid dripped into my arm.
I felt nothing until about ten minutes and then started feeling "funny." My heart began to race. The nurse immediately took my BPand slowed the drip down temporarily. All was OK. I took a couple of breaths and relaxed. After that everything was fine. I think I was so anxious for the Tysabri to work that I must have had a mini-panic attack!
An hour later the IV was flushed and removed. I didn't feel a thing. I continued to watch the video until my wait-around hour was up. I made my appointment for 28 days later and left. Had I needed Benadryl IV, I would have needed someone to drive me home.
I asked if each appointment had to be exactly 28 days apart and was told that it could vary a few days either way. That was helpful to know.
I had no side effects when I got home. Likewise, I noticed no difference. It has been 5 days now, and I remain the same. I really did't expect to see a difference, for Tysabri is not a "cure."
I have to say that this certainly beats the injections!!! I know there is some skepticism about the possible long-term effects of the medication, and I sometimes wonder about that too. However, not having the side-effects of my inteferon so greatly improves my quality of life that I am willing to take a chance. There are those who have been on Tysabri for a couple of years now, and so far there have been no serious complications. Here's hoping that continues!"
Thank you for your first-hand reports. Please try to note the expiration date on your dosage, and report it to the board when you give us updates. That information will help us to monitor the inventory levels to a certain extent.
Thanks for posting your personal experience with your first infusion. I am sure most of this board is interested in your observations about your condition and how you feel with each infusion.
Please note and post the expiration date on the TY vial and the date of the infusion. I am trying to calculate the rate at which BIIB/ELN is running thru each month's production. You end users post the expiration dates, and I'll post my calculations.