I long Very Hard Fought Battle with Glioblastoma. This guy was the real deal, he participated in the IMUC clinical trial.
He passed away peacefully in his sleep and was actually going to try Celldex's drug, but time ran out.
I checked up on his board last night, almost feeling guilty for knowing that he had to accept his situation and knew his death would be soon when his wife posted for him. I feel bad for his wife, who took such good care of him and was a great supporter, and lost her mate and partner. I feel bad for Ken. He really tried not to leave this world and did the best he could going from trial to trial, so he could live and be with his wife who was taking good care of him and really loved him. I can only imagine what he was feeling. Not only does it suck to die, but even though it wasn't his fault, imagining myself in his place I would feel grief, fear, and even guilt even knowing I would be forced to leave my wife against my wishes and had no choice but to accept it. That has to be an awful thing to face. The only solace that I can take for them is his suffering and sadness is over and he is at rest and has nothing to regret.
I also in some way feel happy for his wife, not now, but eventually. Although I can imagine how sad she is now, I think that she will see the pictures of them together, and will be reminded of how much they loved each other, and be proud of the life they had together and that she took such good care of him and that they fought together to the end and never gave up. She will need that solace.
Best wishes to you and your family.
Just reminds us that while many want to profit from the success of ICT 107, the real winners will be those with this horrible disease. God bless Ken and his family for participating in the search for a cure....hopefully his courageousness will benefit future GBM patients.
So he will be counted as an "event"? I think they have to come up with another term instead of "events" to make it more human and humane. "Event" is okay statisticians but it sounds so cold.