They claim those boys walked a certain amount but in fact one of the boys walked 3 miles in a parade and it is on youtube......whats up with that?
Did he walk 3 miles in 6 minutes? That's the question. It's a timed test. He may have been able to walk 3 miles at his own pace before taking Eteplirsen.
The fact is Max was approachng wheel chair stage of his disease before Ph2 selection. And now he is running.
The fallacy of the current 6mw test is that he is NOT allowed to run. That is lunacy and makes no statistical sense. It is only an anecdote which is bascially nothing.
post on board from jenmacnary says he's getting better and better..that's great!