Two things came to my mind:
1) what a great family
2) Don't even think about selling a single share
Right now the concentration is on a single exon, exon 51, but there were participants there who spoke about the broader potential of some day treatments for other exons.
Also important and not often discussed is the worldwide market. DMD knows no boundaries and there are many more cases around the world than there are here in US. One mother even spoke about moving to Europe to get the drug if the FDA is not willing to move this along quickly, so worldwide market is big-and for that SRPT would probably need a partner.
Last, if you live in PA please contact Congressman Mike Fitpatrick or Congressman Joe Pitts. They are champions of our cause and they are eager to learn more about DMD and assist where possible.