Hopefully, Janet Woodcock, director of the Center for Drug Evaluation and Research at the FDA, was able to relate to you being a mom herself. Hopefully, she will do all within her power, even while dealing with gvt. rules and regs. At least you have her attention, that's all we can ask for. I don't know how she could sleep if she turned this down. Jen, you are a true hero, and I don't know who is stronger, you or your boys. God Bless.
Dr. Janet Woodcock being the mother of two girls, she can relate to you as a mom and understand your position.
Hi Jenn, thought you would like this...sure you probably already know but just in case. President Obama is spending his vacation golfing with Sarepta Board Member Tony Chase. Can't make that up. This is getting interesting.
Hi Jenn, congratulations you did it! I know you're glad to get back home where, I'm sure, it's much quieter than here in DC. It was very nice to meet you and your family at the meeting at Rayburn. As I mentioned to you when we met, I've lived in DC for about 15 years and I know it can wear you out. Let me know if I can assist you in any way, especially when you're here in DC. -Jim
You are a wonderful person to do this and your efforts will help countless others who follow behind you. May God bless you, Max, and Austin. If we can do anything to help, just say the word.
Many many thanks for this positive message Jenn. Have a good trip home and give a hug to Max and Austin - tell them there are lots of Sarepta investors who have them (and your whole family!) in our prayers. God bless.
Sentiment: Strong Buy
You are a real hero and inspiration to all of us. Thank you so much for commenting on this board. Hopefully many of us will be able to get involved in supporting your efforts on behalf of DMD kids - they are all precious and deserve the best care available.
Sentiment: Strong Buy
Thank you so much for the update and absolutely awesome to hear your meeting with the FDA went well. I could think of no better way to open their eyes! I hope your trip and all your efforts will get the desired end result - the well deserved access to the drug for BOTH your sons!