For those inclined, a special prayer is warranted for the fathers of DMD boys who have sacrificed and suffered as much as anyone but in anonymity while the DMD community tells its story through the mouths and souls of the moms. Who can argue with that approach? Its logic and effectiveness is obvious.
But that approach and the mention of Rand Paul got me thinking of Sarah Palin.
Now, I now that the person who claims to have contacted Rand Paul is lying and desperate to slow down the share price momentum and I know that getting Sarah Palin involved in anything is not a sure fire way to gain credibility on an issue. Nonetheless, if PPMD and MDS are not going to get fully behind an apparently safe treatment for the boys, why not use Palin’s resources?
Has a DMD organization contacted her?
Doesn’t Palin claim to be a Momma Grizzly Bear when it comes to her kids?
Doesn’t she have a special needs child?
Doesn’t she detest unwarranted government interference?
The boys will eventually get the drug without celebrity help, but any nudge/publicity she might give might be worth her taking credit ….. even though full credit goes to the DMD moms, the SRPT team and the brave pioneering boys.
hssquirrel hit the nail on the head - what we needed was exactly what was delivered last week - moms of boys with DMD describing how truly horrendous this disease is and how, in the case of Jenn, Etep has changed their boy's life, along with scientific experts explaining how the drug works and why it needs to be given AA. Thrusting Palin into the spotlight, a woman who doesn't believe in science or have the ability to speak intelligently about DMD or Etep would only be a distraction. Besides, there are so many people that hate Palin, her "support" might actually harm the agenda of the DMD moms.
Bill. What about Michelle Obama? She is big into childhood nutriton believing an ounce of preventon.... Maybe she would go bat for those boys who are the victims of a abnormal gene, with a possible theraputic agent just begging for use. As long as we are wishing maybe a E-mail to her would be in order. Nothing ventured, nothing gained.
The story on the AVI board and Wall Street Journal was that Obama's trust account owned shares of AVI on advice of a political friend and campaign contributor who was a owner or partner of a hedge fund that was a "short" market manipulator. This would have been around the time of the Hep C stock price disaster. A time when there could be more shares shorted than shares authorized and no one cared.
I also believe that the story was that he purchased the vacant lot next door to their home in Chicago and had the lot wrought iron fenced in, and landscaped. It was posted on the AVI message board