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Exelixis, Inc. Message Board

  • metropath metropath Mar 7, 2013 11:52 PM Flag

    Google cabo/xl-184 in yuaigongwudotcom (Chinese message board

    It is a heart broken experience in my search for this Chinese message board, the same experience I had with kidney cancer chronicles a few days ago. Here is the brief summary:
    -the message board I referred is exclusively for lung cancer with bone mets.
    -they got xl-184 through mail orders (? from US, very expensive to me).
    -majority of these posters presented themselves as patients' son or daughter.
    -detail description of side effects and the effectiveness of xl-184 in dealing with bone pain, symptom improvement, being able to resume their daily activity, and shrinkage or disappearance of neck node/mass (neck lymph node mets). Overall experiences were very similar to what Chris' personal experience described on kidney cancer chronicles.
    -many were asking for help/questioning on the dosage of xl-184. most of them adjusted the dosage (to as low as 20 mg) by themselves when side effects kicked in.
    -It seems to me that many of these xl-184 users were on their own, with no up-to-date clinical follow up like bone scan, CT, MRI, PET scan....however, quite a few with serum CEA.
    -From all the posts (2011 to 2013), more than half xl-184 users (? 80%) had experienced improvement on bone pain, shrinkage of neck node/mass, gaining energy/body weight, etc; most users experienced the improvement as quick as few days after starting treatment. very few discontinued because of side effects (mostly GI). some stay on xl-184 as long as 3 to 4 months. many users stated side effects tolerable and few even said xl-184 being the most tolerable among others.

    Sentiment: Strong Buy

 
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