Hello everyone! It’s strange being online. I’ve taken a glance and been told I have had many well wishes.
I planned to stay offline while focusing on recovery. I plan to still get back to everyone personally but right now I just want everyone to know I appreciate you very much.
I know the burning desire and even a feeling of desperation to know something new when a pALS has a new procedure. I do want to say to the ALS community that I feel very positive about my experience.
I’m still very focused on surgery recovery in general and that is going very well.
I will be back to blog more soon.
Again, thank you all for the messages.
She just updated a few minutes ago and stated: "Thank you very much for thinking of me. I wake up every day feeling better than the last!" I hope it is a success for her and for the many others!
April also posted this on her Twitter account: "Another big thanks to everyone for kindness to me! We are winning this war against #ALS #MND We won't stop fighting and advancing. Never!" You can go to Twitter and search for April ALS (April Moundzouris). Nothing new on her blog since 11/7/13.
"My wife's first blog while home recuperating from major stem cell surgery. Not to brag but my wife is one bad #$%$ person. She had a cervical laminectomy that lasted close to 8 hours. The surgery was on Wednesday, October 30th, and by Friday she was out of ICU and on a regular unit. just 3 short days later she was discharged. Since we arrived home on Monday, she has been doing fantastic.. aside from the obvious pain from the incision. For those of you familiar with the cervical laminectomy know how painful and debilitating it is.. My wife is my Hero!!!"
I checked her blog and can confirm that the message above was posted on her blog. (You can Google April's ALS Express). Very good news indeed that she sounds good! I hope that she reports that she is home and of course I hope that she regains some capability but in all likelihood the outcome to expect and to really hope for is that the procedure will delay the disease progression. The hard part is that long term data takes...you guessed it: a lot of time.