We can argue over which delivery system is better/best, but it is an individual response. Even the earlier eFlow neb showed poor deposition to the lower lung resembling the dry powders upper respiratory concentration. All the bashing on the hidden "problems" in the poster presentation did was to overshadow the one thing we wont see until there is long term use of arikace...what it hinted...the FEV1 improvement or stabilization. No matter the delivery mechanism, every therapy shows a degradation in response. Only Arikace with the eFlow neb has studies that suggest (yes, even the poster) a stabilization and possibly an improvement.
“My daughter started the new TOBI podhaler last month. I was so happy about having less nebs to sterilize. However, she started having problems with blood in her sputum which is not the norm for her.
“I've been taking the podhaler since it came out, so three or four doses now. I notice by the end of the month my lungs are tight and I am coughing a lot more. I think the podhaler is causing irritation.
I wouldn't be surprised if it was causing bleeding as well, irritation and bleeding go hand in hand for me.”
“My daughter had to stop because it made her so tight and cough. We took her to doctor and lung function was down to 34% and blood oxygen levels were 86% . Her blood oxygen has never been that low and this is the first time she's ever needed oxygen. Don't know if it was because of tobi ph or just because she was having a cf flare up.all I know is when she started the Tobi pod her lung function was 51% three weeks later 34%. Either way we are going back to nebulized Tobi. “
“Sounds like this is working out so well that I can't imagine why I have always refused to use Tobi.”
“I found the posting about the Podhaler: the person says that she had been taking the capsules with fast deep breaths which is wrong, the correct way is to take each capsule with *two slow breaths*. Apparently the instructions are not clear about this, she had got the information from the company rep. The Podhaler must have gone through a lot of testing so I would assume it is safe if used correctly. “
“I tried Tob* Podhaler and was looking forward to use that instead of IV, but I cough so much that I culdn´t continue with it. It´s very different between cf-users. My sister can take it and she has Booth cf and asthma”
“So far, we really like it. The podhaler seems to be much more effective than traditional neb, or eflow. Our experience so far has been positive.”
Sentiment: Strong Buy