then most of the parents
only 2 parents have made comments about the abortered SRPT trial
personally i don't think these parents even give a #$%$ that they just got smacked in the head twice in past 7 weeks
if they don't give 2 #$%$ why should we
well i care regardless of their dear in the headlights look
There are actually three others that I know of as seen on twitter:
I'd wager most parents actually do give a #$%$. It's just that most people in general would often feel hopeless in a situation like this, and as a result, not know how to respond.
then the parents should be thanking the shareholders at SRPT
because we all write letters make phone calls + donate
when we could just as well sit on our big #$%$
and we do it ALL the time not just when the charities ask us to
My guess is they just don't realize how bad they've been had.
This has bothered me also. What's going on with the others? Are they NOT impressed with what's going on with their son(s)? If not, then that's not good.
If you're on twitter, how about asking Jenn what she thinks is going on with the other parents' silence.
Has it ever been considered that they don't know yet? Not everyone are market watchers. Many are dependent on their doctors telling them the news who might be waiting before panicking the parents. Just a thought.....
If the other parents ever intend to share more, now would seem
To be an ideal time. I can't imagine any parent of an Exon 51 kid being at all happy with recent events.
Right now I'm not worried about what jenn is thinking
We have to move on without her
She'll find us when she's ready
with the track record of MDA/PPMD and CURE over the past 3 years the parents have no worries
these charities are 5 star at raising money with a ZERO return on equity
other then a 7 day boys camp adventure and a bunch of conferences telling everyone how hard their working