"NTM Info & Research has joined the European Organization for Rare Diseases (EURORDIs) as an associate member organization.
A non-governmental patient-driven alliance of organizations and individuals active in the field of rare diseases in Europe, EURORDIS supports the creation and development of rare disease national alliances and disease-specific European federations and networks. It represents over 600 rare disease patient organizations in more than 50 countries, covering more than 4000 rare diseases, and is the voice of 30 million people affected by rare diseases throughout Europe.
EURORDIS actively participates in the development and implementation of policies to bring real solutions to people living with rare diseases in the areas of prevention, diagnostics, care, research, medicines development, social services, information, education, and more. The organization was founded in 1997. "