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MannKind Corp. Message Board

afrezzauser 39 posts  |  Last Activity: Dec 1, 2014 12:24 PM Member since: Aug 16, 2012
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  • Reply to

    100k patients

    by doctorgreenback Nov 30, 2014 1:39 PM
    afrezzauser afrezzauser Dec 1, 2014 12:24 PM Flag

    If I did not get on Afrezza 100% I would have dropped out. Even on Afrezza the trial was very taxing and cumbersome. When the FDA was complaining about dropouts I was about to jump out of my seats. I knew the answer as too why so many dropped out. I wanted to toss the PDA we had to use out the window to be honest! It was about as annoying and aggravating as it possible could be. We had to do dozens of tests and appointments all over the town. Lot of time spent waiting around as well.

  • afrezzauser afrezzauser Nov 27, 2014 12:12 PM Flag

    Perhaps you should put me on ignore. If you are happy with your current treatment you don't have to use Afrezza. All the diabetics I know have the same issues I have and 40 percent of type one diabetics have issues with lows. 1 in 12 will die from a low in their lifetime. Your answer is its their fault cause they took too much insulin. No other comment is necessary here. Put me on ignore.

  • Reply to

    Follow me:

    by afrezzauser Nov 26, 2014 11:30 PM
    afrezzauser afrezzauser Nov 26, 2014 11:45 PM Flag

    My ulterior motive is to help diabetics and keep spreading the word about Afrezza...Thank You.

  • afrezzauser afrezzauser Nov 26, 2014 11:26 PM Flag

    If your immune system attacks your islet cells you are type 1. As your islet cells get destroyed your blood sugar starts going hey wire. When I was KDA I cut out all sugar from diet so my remaining cells pumped enough insulin out to keep me going for over 2 years. I weighed 190lbs during this time and my body was starving. Yes, I should have gone on insulin in this phase. Sadly doctors do not even understand what is going on here. This is referred to honeymoon phase or 1.5 as there is no stopping the attack and eventually the pancreas is done. What made me think that I was going to be ok is that I did not understand what is going on. I thought it was a temporary blip in my body.

  • afrezzauser afrezzauser Nov 25, 2014 5:13 AM Flag

    I am type 1 but went through honeymoon phase...please see twitter about that.

  • afrezzauser afrezzauser Nov 25, 2014 5:10 AM Flag

    Diabetes is not that simple. Please read article on my twitter regarding living w diabetes.

  • afrezzauser afrezzauser Nov 24, 2014 1:32 PM Flag

    I would agree 100%. I should have been on insulin when I was in the honeymoon phase (type 1.5). I pretended everything would be ok. If Afrezza was available I would have taken it.

  • afrezzauser afrezzauser Nov 24, 2014 1:17 PM Flag

    I think as we get closer there will be more media coverage. It was hard for me to believe everything Al Mann claimed till I was on Afrezza. Using it is believing. I dont expect people in the public to be excited about it since it is not even on the market yet. Once on the market more people such as myself will step forward. It will happen!

  • On Afrezza:

    1, Less need to carry around emergency "feed the insulin" products. This also leads to snacking as how long can you keep something sweet on your pocket. Yes, also carried around the gels but do people realize how nasty that gets after a few days? Glucose tablets? I snacked on those too. lol.

    2. Lost 3 lbs on Afrezza.

    3. Titration was about as easy as it could get but I had to follow doctors orders limiting my a1c results. I always said I could have achieved low 6s if not under protocols.

    4. Less finger pricking. More control in a tighter range meant less checking of blood sugars.

    5. No worries taking Afrezza as late as 11pm as mentioned at Adcom.

    6. Less issues with anxiety and depression in regards my diabetes

    The list can go on and on.

  • Reply to

    by Psycho Analyst

    by pfw2141 Nov 22, 2014 8:16 PM
    afrezzauser afrezzauser Nov 23, 2014 10:31 AM Flag

    When I took Afrezza the first day I felt like I won a lottery and nobody in the world knew about it. Off course I would not want the world to know if I did. When it comes to Afrezza all diabetics and doctors have to know so that they can make a decision on what is best for them. How many times do I really speak of Afrezza being so great because I do not poke myself with needles? I hardly ever do! The speed of the insulin with no tail ends changed my life and not the needleless delivery. I know that you know this but at this point there are so many new people on this board it is worth repeating for others. Everyones knows a diabetic and I found this board to be very helpful to spread the word and my message.

  • afrezzauser afrezzauser Nov 23, 2014 10:22 AM Flag

    Drugs are not a fix all in one solution. Many want to discredit Afrezza saying what about this and that. Pumps are on the market and I do not use one. Only 1/3rd of type 1s use a pump. If someone wants to drive a pinto vs the Ferrari of insulin which is Afrezza that is their choice. Ever since I have been off Afrezza I feel like I am in the dinosaur age of insulin again. If it did not do what it did for me I would not have talked about it for 2 years. My time is valuable and it did take a toll on me. We have to manage a life threatening disease daily and for many it is hard to understand what that means. I have a few friends who recently suffered other disorders and they suddenly realized what we deal with. I used to be one of those as well before getting diabetes so I definitely understand. I wish schools would teach diabetes 101. So many later on in life get this disease and it is so important to catch it when someone comes down with it. If Afrezza solved my problems there will be millions around the world that will do better with their diabetes control hands down. I am a true believer of this and that is why I am here.

  • afrezzauser afrezzauser Nov 23, 2014 9:59 AM Flag

    I made an update on twitter as well. I certainly had some episodes of hyperglycemia when I was sick recently. I was very frustrated recently because it took me all day to bring my blood sugar levels down on current insulin treatments. It was tiresome waiting around hours for sugars to drop and than have to take another dose and wait 2-3 more hours. I was thinking if I was on Afrezza problem solved in less than an hour. On Afrezza I would have no tail ends so I could repeat a dose in under an hour. Being on Afrezza for 6 months solved so many daily challenges that I had to get the word out using whatever means I could. As I said I do not claim to be an expert but I must that my diagnosis was not treated correctly 12-13 years ago by doctors when diagnosed so who is the expert.

  • afrezzauser afrezzauser Nov 23, 2014 9:46 AM Flag

    I do not disagree. I posted a comment from diabetes dot org below.
    The friends that died of lows were all type 1 and highs type 2. Both type 1 and type 2 can die of hypoglycemia and hyperglycemia. I was simply highlighting what we are prone to having. I do not claim to be a diabetes expert but whatever awareness we ran raise for these issues is a win. Thank you for the reminder.

    Low Blood Glucose (Hypo) & Type 2 Diabetes

    People with Type 2 diabetes tend to be less prone to having low blood glucose levels than those with Type 1 diabetes. However, you should still know what a low blood glucose level is and how to both treat it, and avoid it in the first place.

  • afrezzauser afrezzauser Nov 23, 2014 9:37 AM Flag

    Sounds good. You can follow me on twitter and private message me as well.

  • Sanofi will probably run more trails with Afrezza. The trials we were on were not well designed to show how effective Afrezza is. I hope that Sanofi will run trials with trial patients wearing a dexcom monitor that will blow most critics away. The target range and post meal readings should show amazing results. My personal plan is to wear a Dexcom monitor while using Afrezza which will be my artificial pancreas. Afrezza is the first Real Time Insulin that mimics the pancreas so if my Dexcom monitor goes off at 140 I can correct it immediately. I will say that its not necessary with the results I had but I want to see if I can get into the 5s on my A1C. In a non diabetic if your sugar rises your body alerts to release more insulin. The same way my dexcom monitor will give me an alert. However, instead of waiting 1-2 hours for the insulin to kick in Afrezza will go into action in minutes.

  • Hypoglycemia kills type 1 diabetics. Hyperglycemia kills type 2 diabetics. Unfortunately there is not enough education in the public to be aware of what these symptoms are. There are 1000s of people that die every year needlessly because of this lack of public education. I am shocked that most people do not understand the basics of diabetes. I did not understand this which almost cost me my life when diagnosed. I will be tweeting more about this as well today. So in my opinion what is the best solution for both of these problems? It is Afrezza as I had 0 hypo incidents on my trials. I did have one or 2 readings in the 60s but nothing under 50. This today on Novolog is a weekly event if I try to maintain any control.

    Many type 2 diabetics do not take insulin because of the stigma associated with needles. They risk their lives on the high end and this is where Afrezza comes in for type 2s as well as regards to Hyperglycemia

  • Partnering with Sanofi was a great move as Mannking needed the marketing muscle. However, I think that once diabetics get on Afrezza they will spread the news about it like a wild fire. Everyone knows how excited I have been since being on Afrezza and I have no doubt many more will feel the same.

  • The excitement is building. I cannot wait to see AL Mann on CNN again!!! My speech is posted on youtube and twitter for those that have not seen it.

  • I put up a picture showing the choices I have soemtime in 2015 regarding my diabetes care. Look up my yahoo handle.

  • Reply to

    My Endocrinologists Visit Today :)

    by kevinmik Oct 13, 2014 11:58 AM
    afrezzauser afrezzauser Nov 17, 2014 11:12 AM Flag

    It will be! As I mentioned many time you have to be on it to believe it. I just made a tweet on treating highs with Afrezza. Once I left my inhaler at home by accident and went to eat pizza with a friend. He asked me if we should go abck home to get it. I told him I was not worried about since I can get my blood sugar back to 100 in under 30 minutes. Once I arrived at home my blood sugar was around 280 and yes it was low 100s in about 30 minutes. No, I did not have any lows later. Real Time Insulin!!!! How many more times will I say that term? Every time I talk about Afrezza. Afrezza! The Only Real Time Insulin!

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