And perhaps the final lines to those boys as well:
If you can fill the unforgiving minute
With sixty seconds' worth of distance run,
Yours is the Earth and everything that's in it,
And--which is more--you'll be a Man, my son!
(The 6 minute walk test. Quite a coincidence.)
It's interesting that while the first half of that stanza can apply to long term longs here the rest of the stanza can more aptly apply to the DMD boys we are hoping to help. Check it out.
If you can make one heap of all your winnings
And risk it all on one turn of pitch-and-toss,
And lose, and start again at your beginnings
And never breath a word about your loss;
If you can force your heart and nerve and sinew
To serve your turn long after they are gone,
And so hold on when there is nothing in you
Except the Will which says to them: "Hold on!"
From Thaigirlsrock's posting today, go back 8 years to Teachersr0ck's posting of the complete poem. (You've come a long way, baby....as have we all) ....8 years ago we had truly "lost it all". Today we only have to endure "waiting". Both trials are addressed in the poem. Click on the tread title to read it all - especially the second to last stanza. (You might note that Starfe is the antithesis of Kipling's definition of a man.)
If July 17th was the day this patent application (and Sarepta's involvement) became public, it's perhaps related to Krieg's getting fired one week later. A theory: Perhaps he was spilling the beans on how we were going to use this patent. Or not use it, but wanted it because it could have maybe blocked something of ours that was very close to it. Or something. I'm sure lots of questions arose in many minds when Sarepta's name was seen on it, and I wonder if Art may have said something he shouldn't have. Maybe not intentionally. Just a few too many or something. Just a wild guess. The timing is interesting..
Please post the link to this German Sarepta patent application on Inv. Village. Can't find it and would like to read the whole thing. Thanks.
The Professor won't trust the judgement of the emotional child-like simpletons - the DMD parents, but when it comes to making a commonsense appraisal of eteplirsen's effectiveness who wins? The Professor or the parents? Not even a contest, is it?
Seems like disaperson would fit your definition of "water" - no dustrophin created and no observed benefit in 6 minute walk (going by the book, as you always insist on for Sarepta's twins!). So I guess you are very upset with Prosensa pushing their "water"....If so I haven't heard it.
We on the other hand habe created measured dystrophin and have seen 6 minute walk test benefit compared to natural history. Prosensa 0 - Sarepta 2. But we're water .... and drisaperson is.....? Tell us. Hazard a guess, Professor.
You're arguments are never effective enough to be called arrogant. I believe I said pretentious, snobbish, yet childishly foolish..... But mainly you're just a tiresome bore.
You just gave one example and it was being "blindsided by the FDA" and you are saying that was caused by a leak from Sarepta? No, that would be a leak from the FDA. Next you give a strangely Piney sounding non-sequitur claiming you are "responding" to Chris talking "undervalued" as though he's talking about this leaker too! But you seem to be pointing to a leak from the FDA. Did Chris somehow get someone from the FDA fired? Your "Jeez Copp" non-explanation reads exactly like maybe 50 such "explanations" coming from Piney over the years. And I suppose you realize that too and at this point you just don't care. Meanwhile, I wonder WHO in SAREPTA you (and Piney) imagine this nefarious leaker (of whatever) to be .... and now he's gone, supposedly. Goolsbee's not gone, but something tells me you are afraid to say it's him you are fingering. I think you're just a conspiracy nut who thinks too much. Especially for a free-lance graphic artist in the Boston area who showed up here 3 years ago!!!!
Why does it sound reasonable? Do you know of someone being fired who has been leaking for years? Art was there 6 months, so Grey is not talking about him. I don't know who he could be talking about. What are you basing this "guess" on, Grey? I know Piney has been complaining for years that someone must be leaking. As has Starfe. I don't recall Grey ever saying anything. So what are you talking about, Grey?
"We don't let desperate people make the choice because their emotions can cloud rational decision making."
And yet in Holland they are considering letting children choose to end their lives, just as adults currently are allowed to do. Is their logical consistency here? Or just off the cuff laying down of contradictory dictates depending on whatever moves them at any given moment? Based on emotion perhaps? Pastuer like many European ellites is an intellectual snob hiding a childish fool.
Grey, how are you privy to something like this?
"He knows that the serious leaks he has been fighting for years have been plugged (removed)."
Sometimes you say things like this that make you sound like Starfe....or Piney? How would you know something like this? I sure know nothing like that. Foxy, are you privy to this kind of info?
Firedin, I take it you're a European biotech guy? I looked up KNAW and I still can't figure out what it is! Explain it if you like, but Ru Pasteur has always seemed an afterthought to me. Her logic was so twisted I thought it was some kind of a joke. But yesterday she quoted a paper by Amanda Rus (as I call her) and it was exactly Pasteur speaking! Transparent intellectual dishonesty intending to sabotage Sarepta (and the dystrophin biomarker case). What kind of professional would actually put her name to such foolishness? The same kind of nut that would post the junk Ru/Pasteur posts here! But it's so stupid - though truly wild! - that I don't think it's even worth more than a sad shake of the head, at this point. She's got problems - if this is for real, and she should just stop.
That's her employee number? Same as Pasteur's id? I figured when she told someone her name as a teen and they asked the spelling of the last name she spelt it "RUS, as in RUSperienced?" - the joking Jimi Hendrics reference. Here it became RUempirikos. Actually she herself explained the Hendricks reference here years ago. There is also probably a "Rue Pasteur" connection there too somewhere or other. Probably a lot of Rue Pasteurs around. (French for Pasteur Street)....I remembered last night that my family actually lived one on in Saigon, once upon a time! ... Perhaps there's one at that Leiden University or something in her past. Clever, I'll say that!!
Anaconda Ruse. Brainy people can be a bit off their rocker sometimes. Not unheard of. Money's involved too. Not just ego. Although ego is probably enough. Truly sad, if true.