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Sarepta Therapeutics, Inc. Message Board

kpr4444 9 posts  |  Last Activity: May 8, 2014 6:08 PM Member since: Jul 19, 2006
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  • Reply to

    the next support level is ptr 20

    by iluvbokoharam May 8, 2014 5:32 PM
    kpr4444 kpr4444 May 8, 2014 6:08 PM Flag

    Anyone who would use that sign on name needs to be put on ignore immediately, then have an up close and personal visit from a drone.

  • Amazing that Gupta interviewed Dr. Hamburg on a separate issue right before the segment with Jenn, Max and Austin.

    Gupta presented Jenn and family as a human interest story, and it was positive and hopeful. That said, he did not spend time on the breakthrough science. He perhaps misspoke when he said that the drug did not show "many" side effects.

    That said, although the interview was not, IMO, courageous - it was positive.
    Kath

  • PBS segment tonight was about the high cost of Gilead's new drug for HepC. They brought up the topic of the high cost of pharmaceuticals and the idea of having a discussion re the question of costs rising as new, sophisticated drugs enter the market.

    Matt Salo, National Assoc. Of Medicaid Directors, "This really is the tip of the iceberg. There are so many drugs that have the potential of bringing, on one hand, incredible improvements in human life and health and well being. But, on the other hand, extraordinary costs."

    Salo said that he would like to see a national dialogue about what insurers shoulder cover.

    "I think it's critically important that we start having that conversation about how do we value health? What price health? What price pharmaceuticals?"

    According to the program, HepC affects between 3-5 million people (US?) and costs approx $120K for the total short term treatment, Eteplirsen will be long term use for far, far fewer patients.

  • When I wrote to the Daily Show and also wrote a longer explanation of the importance and background of the questions to Comedy Central execs, I began both communications with the request that they not blindside the senator.

    I asked that if they wished to include the FDA topic in the interview with her and use any of the following questions, would they please ensure that she received a "heads up" prior to going on air.

    I did not think to actually send the letter to her and should have done so. Thanks to list members for the suggestion. My bad. Sorry.

    Kath

  • Reply to

    Questions for Jon Stewart

    by likeafox7210 Apr 18, 2014 11:35 AM
    kpr4444 kpr4444 Apr 18, 2014 2:54 PM Flag

    In the interests of time (show airs Tuesday) I took your excellent input, added a little and sent it to The Daily Show.

    Then I looked up the email addys of all the Comedy Central execs who are Press Contacts: Sr. VP, VP, Communications, Consumer Pub., etc. I took your points as the bones of, what turned out to be, a full page email to the execs.

    Hopefully, someone will take the time to read the letter and will think it interesting enough to forward on to whomever will be able to get it to Stewart's, or his writers', attention.

    Thanks again for getting the ball rolling.
    Kath

  • Reply to

    Elizabeth Warren on The Daily Show 4/22

    by kpr4444 Apr 17, 2014 2:23 PM
    kpr4444 kpr4444 Apr 17, 2014 11:41 PM Flag

    Excellent. Look forward to seeing what you come up with. Thanks.

  • Reply to

    Elizabeth Warren on The Daily Show 4/22

    by kpr4444 Apr 17, 2014 2:23 PM
    kpr4444 kpr4444 Apr 17, 2014 8:25 PM Flag

    Good. Having been on the show years ago is still an opening. Whatever works. Please let us know if you are able to get any info that would help us.

  • Reply to

    Elizabeth Warren on The Daily Show 4/22

    by kpr4444 Apr 17, 2014 2:23 PM
    kpr4444 kpr4444 Apr 17, 2014 8:22 PM Flag

    Yes, please put together some questions for Jon S. to ask Sen. Warren. That would be great; probably needs a new post (not this thread) in order to get more people to read it. Others may want to add to the list; if not I, for one, would be very comfortable w/ the list that you originate. Your help is greatly appreciated.

  • Any value in our contacting Jon Stewart w/ a very net synopsis of FDA-Eteplirsen situation? It seems like the sort of topic Stewart would love to ask Senator Warren about, especially now that we are getting some interest by the news community.

    Stewart should be interested in the overall AA delay, the toll it is taking on the children and also the hidden issue of Hamburg's spouse. The entire situation is beginning to read like a spy novel.

    We could email and call him. Wouldn't hurt. There are doctors on this message board who could do a great job of listing questions that Stewart could ask Warren.

    Let's keep the pressure on.
    Kath

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