Thank you, Twiz. My PET/CT showed no new involvement. That's good. What's bad is that the tumors are growing quite rapidly and Thursday was taken off the trial. There was no time to wait and had to be started on Yervoy. I did this on Friday morning. Unfortunately this invalidates my possible responses to Il-12. What's good is that it is still working for me. Right along with the Yervoy. But independent measurements for each would not be valid. They also want me to start palliative radiation asap. For those of you that think I'm a fake....tough #$%$. For those of you that have supported this brief travel...thank you. Your good wishes have been appreciated. I would have liked to have been more long-term in my information flow. Be well, guys. Clint
Be cool, Guys. I volunteered all the information that I can give. Maybe it's age, but I have little fear of death. I do fear not living. If I can help a little, all the better. To hippiti - maybe I'm an anomaly. Thanks for the concern. To the original point : At this level, if you ask, nothing is withheld. When we return Thursday I'll answer any / all I can. Bring it on! Clint
Very thoughtful. Thanks. It's a PET / CT scan that was actually moved to tomorrow. Should have results by Friday. Thanks again. Clint
There is joy in your words, oncsup. Congratulations. Not wishing to hijack the purpose of this site but I'm a quality vs quantity kind of guy. I feel good. Don't wish to feel #$%$ for a year while taking some cancer treatments if I've only got 18 months (could be 20 years) . Therein the beauty of electroporation. You are an inspiration. If questions regarding melanoma come up, plesse contact me. Same for anyone out there. Clint
I took all the pain meds they offered. Plus, I have some nerve damage in my back and already had 30mg of hydrocodone in me. The pain, though impressive, is brief with NO residual. In the scheme of cancer drug side effects....minimal. I have a PET/CT on Tuesday. Will follow up with you if you want. Clint
Forgot...at the discretion of the doc and ONCS, the procedure an be repeated. They will not if there has been progression. Clint
Sure. You're in a hospital room as it's not a full-on sterile procedure. I was in shorts/t-shirt. About 45 minutes prior you'll get pain & anxiety meds if requested....request the pain meds! Up to 4 tumors can be treated. My 4 had been previously chosen, marked and photographed. Each tumor area is injected with a numbing agent. Then, one at a time, a tumor is injected directly with Il -12. You saw the instrument in the video, but it looks like a longer electric toothbrush with 6-1" pins at the end. The pins are then pushed in around the tumor. You're asked if you're ready. You hear 3 clicking sounds which i believe is the instrument charging up. Then WHAMMO! There are 3 very fast pulses during the shock. I think this is the power circling the tumor. Whole thing is maybe a second to a little more. 1300 volts each time. Yes, my leg had to be held down. My wife said my face looked like a cartoon character. Like painting a house....all prep work. The actual shock process was less than 10 seconds. But believe me, you're tired. This is done on days 1, 5 & 8. Filming the session was fun. President on ONCS was there. Very interesting guy. Hope this helps. Clint
Thank you. The treatments (3) are complete as of a couple weeks ago. No effects as of yet but we're keeping the faith. Supposed to keep vigilant for 4-6 weeks. Clint
Might you trust me now? My name is Clint Cook. I tried to be upfront with you guys.
Thanks. Feel free with any questions. Most can be answered and some soon to be answered. One case does not make / brake a trial but it is truly interesting.
No. You're cool. If you drive a Ford you can still buy "F". I'm not passing on everything and certainly nothing "insider". Thanks for the good wishes and good luck!
That's how I found this site. I have been an investor and did a stint with Dean Witter as a Registered Rep. Frankly, it's hard to think "long term " right now. However, with my limited exposure, it's obvious that there is real growth potential. In the instrument alone....there could be so many adaptations. All it takes is money.
Hi. It's a direct and relatively simple process. While very short lived, NOT a painless process. I would certainly do it again. We're told 4-6 weeks to ascertain results. I spoke to one participant that had one tumor shrink after the first application. It's been two weeks for me - nothing yet. I was chosen due to a diffent tumor type. While most tumors are separate and easy to identify, mine are in a growing mass....like blackberry jam complete with seeds spread over the leg. They just picked out the four largest. The purpose was to more readily see if it worked on mre than just the subject tumor. They have had some mild systemic response. I met the ONCS President/CEO. Fascinating young man with vision. Drips smart.
Yes and that was I. The actual application only takes about 10 days. Then the waiting, biopsies and scans begin for one year. You agree for up to a 5 year follow -up.