I was hoping by dec 31st but thats not going to happen now
maybe they catch a break in early 2014 before its to late
lets keep them in our hearts going into the holidays
even a small amount that you would never consider a month ago means a whole lot today
happy holiday longs
we so called die hards just think obama is tearing the country apart piece by piece. in another 3 years iranian leaders will be breaking bread at the white house and lighting the nbc Xmas tree.
Assad and his lovely wife Asma will be spending New Years in 2016 in Jackson hole
but i got obamacare so all i have to worry about is getting really sick
see stockholders as used car salesmen. we're just here to cash out .
personally i couldn't give a #$%$ what they think of me. I know whats I've done to try to help this along and so have many of you who post here.
yes we are all evil do'ers who would like to make a buck along the way but we get what just transpired with the FDA. We take it personally not just in our wallet but how friends of ours just got screwed over like Austin and Jett + countless others boys we never head of.
The duchenne community is lucky to have us
i'm not so sure they're thrilled with me right now. tough nuts
Cure is so busy on their next event they forgot a few boys and their parents needed some backing.
well #$%$ k y o u
Champions to CureDuchenne - Austin Gala April 11, 2014
Blingo to CureDuchenne May 3, 2014
Bowling to CureDuchenne - 2014 February 16, 2014
Tinker Bell Half Marathon January 19, 2014
Climb to CureDuchenne: Pick Your Peak 2013 December 31, 2013
i don't think anyone gives a #$%$ what happened except for the parents in the trial and some investors on this board. yeah a few mothers who post on the ppmd board have a comment here or there but theres no outrage from the community
mda couldn't care less what transpired. they got fireman all lined up for the next donation push along with jack in box.
ppmd is running as fast and as hard to distance them themselves from the disaster. "all the parents should stay strong" until the next fiasco.
Cure duchenne has already moved on to their next 22 fund raisers
hofffman will be back on top again as the lead speaker at all the get conferences.
RNA/SRPT will be donating the donuts and coffee
no one gets angry they just hold another fundraiser
so all is right in the world of duchenne
the song remains the same
we keep hearing about news platforms?
no one is firing him anyway
life is about closers. those are the folks who make the world spin
look at obama.. a real closer... no one can close a #$%$ t i e r deal then him
fact is he keeps on closing with huge obstructions in his way.
i keep asking myself how he gets away with it
he just does
the street is tired of this quy
analyst have been destroyed by him
when MDA called this an experiment it was a hint to partner
not once did they ever call it a trial
all on his watch regardless of your defense
i know we can do better
and it would be someone new i could go after
cg has become tiring
the fact that he can't close anything
cut deals in Australia and the Netherlands that don't pan out
if this is his vision i think i think we need new glasses
i call it a failure for a different reason
the charities never got behind it. not mda not ppmd and surely not cure
thats constitutes a failure to me
Its should be extra large for his hard work burying the srpt trial
The next time you ask friend to contribute to your favorite charity for a sponsored walk,run ,dinner event or some other function you might take a moment and wonder what role your charity played in the events that led up to the failed trial over at srpt.
what was the position of your chosen charity during the last 6 months.
were they helping all they could or were they standing idly by hoping for it to fail?
could they have done more with the working capital you pour into them each and every day?
before you go asking for more donations which you will, what exactly did your charity leaders do to help the cause of this failed trial.
i wouldn't give a dime.
not until i get a straight answer from the leaders who spend these hard fought dollars
this needs a buyout to get the drug to the kids
CG is not up to the task. to many failures but you would think he could catch 1 break after 3 years
i just don't think so
contributors and parents have a right to ask what PPMD did with their money regarding the SRPT trials
did they stand in the way? what did they say
whats was the stance of the Board of Directors? did they want the drug killed?
was used to ignore or even hurt the SRPT trial.
it was used to kill any aspiration that the Jett foundation had to move the drug forward.
my own money was used to bury a trial that could actually help the boys
i believe thats what happened
its so sad