In honor of May being Huntington’s Disease Awareness Month, BioTek reMEDys, one of the nation’s largest independent specialty infusion pharmacies focused on rare diseases, is calling for enhanced education and awareness of the condition. Huntington's disease (HD) is a genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person's physical and mental abilities usually during their prime working years and has no cure.
BioTek reMEDys is urging its clinical and patient constituents and the population at large to become more aware and get involved via national resources such as the Huntington’s Disease Society of America. To draw awareness to the often underdiagnosed condition, BioTek reMEDys is also encouraging people to post photos of themselves wearing blue on May 15th, International HD Awareness Day, with the hashtag #LetsTalkAboutHD on social media.
"Huntington’s Disease is often misdiagnosed or overlooked and we hope to help shine a light on the importance of education about the condition," said Andrew Babb, PharmD, BioTek reMEDys’ Pharmacist in Charge. "While this rare and fatal disease may be unfamiliar to many, it affects about 41,000 Americans at any given time, with an additional 200,000 Americans being at risk of inheriting the disease. At BioTek reMEDys we are proud to be one of the very few organizations today that serves this specific community of patients through our specialty infusion services."
"It’s true that there is currently no cure for HD," added Babb. "But through specialty medications and support, there is much that can be done to improve quality of life for those who have it – and for their loved ones. We’ll be wearing blue on May 15th to help drive awareness, but more importantly, we will be sharing what we know with patients, patient families, and clinicians every day of the year."
BioTek reMEDys provides therapy-specific patient education materials and its National Customer Support Center is available 24 hours a day, 7 days a week to help HD patients and their loved ones manage critical aspects of care. By servicing very specific disease states such as HD, BioTek reMEDys’ expert team can maintain its focus on patient care – making sure that dosages and treatments are appropriate.
Additional information and news about Huntington’s Disease can be found at the Huntington’s Disease Society of America website, hdsa.org.
Founded in 2011, BioTek reMEDys, based in New Castle, DE, has become one of the nation’s largest independent infusion pharmacies focused on home infusion. Chai Gadde opened the pharmacy to meet the specific needs of patients who require specialty medications. BioTek reMEDys and its affiliates are now licensed to operate in all 50 states. For information visit www.biotekrx.com.
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